Telephone Numbers and Contact information
Phone #:(212) 344-6633
Phone #:(800) 323-7938
Phone #:
Phone #:
Phone #:
Fax Number:(212) 747-0004' ;

Web Page:  www.ctf.org
E-mail to:   info@ctf.org

Program Details:
Operating Agency: Children's Tumor Foundation, Inc. ()
Person In Charge: President:John W. Risner
Hours: 9am to 5pm
Eligibility: Individuals with neurofibromatosis and their families
Fees: No fee
Intake Process: Call or on-line
Program Licenses:
Staff Qualifications:
Service Area: National
Handicap Accessibility:

Program/Service Notes:
The Children's Tumor Foundation is a non-profit 501(c)3 medical foundation, dedicated to improving the health and well being of individuals and families affected by Neurofibromatosis (NF). The mission of the Children's Tumor Foundation is to: * Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"). * Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information. * Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and * Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF and encourage financial and other forms of support from public and private sources. Disabling Conditions Served: Neurofibromatosis Users Served: Individuals with neurofibromatosis and their families Services Provided: • Youth summer camps • Referral to NF clinics • Online bulletin board and chat room Resources Available: • Newsletters, both national and international • Questions and Answers about Neurofibromatosis brochure • Online resources including information about NF, a listing of activities by state, and Web links to other NF resources

This information was last updated on 04/20/2010

This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. Area 9 In-Home and Community Services   may not be held liable for misuse of this information.